Make your own free website on Tripod.com


Listservs and Related Mailing Lists of Interest

Catalist (CataList, the official catalog of LISTSERV® lists)


yahoogroups

yahoogroups search for what interests you!

abmd (The Autism Biomedical Discussion group has been created for the discussion of research and biomedical interventions   as they apply to the investigation and treatment of autistic spectrum disorders. Topics of discussion include immunology, endocrinology, gastrointestinal issues, allergies, metabolic and mitochondrial issues, exposure to neurotoxins, vaccine injury, dietary and nutritional protocols, medications, and other areas pertinent to diagnostics and treatment protocols for individuals with autism. Please be advised that group discussions can involve technical, scientific and/or medical terminology, but a background in the sciences is not required for participation. Parents, physicians and researchers are encouraged to participate. This list is NOT for discussion of behavioral or educational interventions, or for the discussion of occupational and speech therapies. It is requested that you please refrain from these topics on this list. )

AUFTHEWALL (AUFTHEWALL is an open, uncensored forum for the discussion of all topics related to autism, including the daily stresses of parenting children with ASD.   The only subject banned is abortion.   AUFTHEWALL contains a lot of humor and some of it may (or may not) be offensive to some, so be forewarned. This list was created by a large group of longtime members of the St. Johns Autism List who wanted to recreate that list's former all-inclusive atmosphere.   While it should be the goal of every listmember to be respectful of the other listmembers, venting is allowed, expected, and will not be censored unless it gets out of control.)

autism_and_vaccinations ( If you're convinced vaccines had something to do with your child's autism, if you suspect, if you just want to educate yourself, come and check us out. If you are of the medical community (and yes we have several) all I ask is you keep an open mind. My goal is not to sway but to educate. Through honest and complete knowledge we can make informed decisions. We are also very politically minded here as well. Whatever else we do here (share info on therapies, education, awareness and all the other things) politics is always right below the surface.)

AutismRecoveryNetwork@YahooGroups.com (AutismRecoveryNetwork is a list for Autism Recovery Network Members and others in Florida to discuss primarily biological issues in autism spectrum disorders. Topics include, but are not limited to GFCFDiet, secretin, research; immunological issues including vaccines; allergies; Florida doctors and therapists: Florida resources, national and state conferences and seminars: legislative alerts: governmental services and their providers; and all resources available to those with autism, PDD, PDD-NOS, Aspergers, HFA, ADHD/ADD etc. young or old. Please join us)

autism-aspergers (This list is for parents and caregivers of kids with autism and aspergers, and any other disability. I am the mother of 4 special needs boys, and I created this list to share stories, ideas, treatments, therapies, advice and support. It's a list where we can all make friends and have fun. There will be no flaming tolerated. )

Autism_in_Girls ( This list is for all parents and professionals who wish to exchange information regarding treatment of autism in girls, how autism effect females in the family, and any other issues dealing with autism and females and/or the comparison of males and females with autism. The list will not be censored in any way so as to promote the free flow of information between its members. The list forum is not intended for inflammatory remarks between members. Those types of posts should be done privately from one member to another, so as not to spark a controversy within the list community. )

Autism-Mercury (To discuss current issues related to the increasing incidence of autism and the potential link between excessive mercury exposure via thimerosal in infant vaccines. )

Autism-Michigan (This list is for anyone on the Autism Spectrum or with a loved one,student or patient on the Autism Spectrum. The list is to provide resource information and support. Posts are not limited to any type of therapy or subject. This is for people to share their experiences and ask/answer questions about Autism. The majority of information may be specific to Michigan but is not limited to Michigan. )

autism_downs_mr (This list is for people who are teachers or caregivers (group home workers, etc.) and are intrested in learning more about disabilites. This list will allow you to explore all of these disorders (autism, downs syndrome, mental retardation, ADD, ADHD and many more). This list is for any person who would like to share theory's, opinions, thoughts, and stories about the unique and intresting people they have encountered.   I have been working with students and adults for eight years and I can tell you AWARENESS is the KEY.   If you feel like this is a list you would like to join please do so.   I can't wait to hear your stories and thoughts. )

autismnet (Attention: Autismnet messages are restricted to members only. You are welcome to join Autismnet anytime to read and post messages.   We have a lot of autism-related posts inside and there is also a search capability.   Join us and thanks. Autismnet is the forum for the web site Autism Network Resources for Physicians.   This is an information board for physicians, researchers, doctors, scientists, specialists and those who have first-hand knowledge of their kids - the parents.   This board discusses research on autism as it relates to genetics, allergy & immunology, neurology, gastroenterology, ophthalmology, dermatology, physical therapy, otolaryngology, orthopedics, podiatry, microbiology, chemistry, toxicology, endocrinology, psychiatry, psychology, etc.   Discussions will be limited to research on causes and treatment of autism, pervasive developmental disorders, and disorders such as ADD, ADHD, OCD, CFS, CFIDS, NDD, etc. as they relate to autism.   Discussions will also include research on the different types of autism such as the Type I autism or classic autism (includes congenital autism and Kanner's syndrome); Type II autism or co-morbid autism (autism that is related to known neurologic and medical disorders such as tuberous sclerosis, phenylketonuria, congenital rubella, Down's syndrome, etc.); and Type III autism or NIDS = neuro-immune dysfunction syndrome (which also includes acquired autism, regressive autism, allergy-induced autism, autistic enterocolitis, autoimmune or dysimmune encephalopathy, and autistic syndrome). Excerpts or articles from sites will also be posted as informational material for our new researcher-parents.   Please use your judgment when reading the articles.   Let us know if there are copyright violations in any of the posts.)

autism-test-treat (This list is for subscribers to list what tests their autistic child has had (with results out of norm ) and what treatments ( including secretin and others ) they had good results with . Its purpose is to identify the differant   circumstances in autistic children and what would be the best treatment based on the out of norm results from testing . ALL AUTISTIC CHILDREN ARE NOT THE SAME ! )

Autism yahoogroups search results (you can go on and on with autism and realated lists on egroups, I encourage you to do your own search at this site for the topic that interests you - treatments, gluten free casein free etc....)

Boardmaker ( Boardmaker is a software program that uses clip art of picture communication symbols which are used in creating printed communication boards, device overslays, worksheets, and schedules. Mayer Johnson has just come out with a new version, and it has much more diversity than previous version. This list is to offer support and ideas to parents, teachers, and SLPs that use it with their children or students.)

lks (Parents talking to parents about Landau Kleffner Syndrome (LKS) and other Speech Disabilities. )

GFCFrecipes · Recipe group for cooking a gluten-free, casein-free diet, especially for chidren.

Meta-mito-autism (A subgroup of children diagnosed with an autism spectrum disorder (ASD) present with a complex mixture of neuro-develomental and health issues.   These children are often atypically autistic; they have significant GI, immune, endocrine or autonomic dysfunction.   Many have experienced at least one significant regression.   Parents who proactively seek better diagnosis and treatment plans for these complex kids are welcome to join this list.   We also invite any clinicians with experience in metabolic and/or mitochondrial diseases and willing to work with parents in understanding the biochemical basis of these ASD subsets)

ot-peds ( Welcome to OT-PEDS, the list for pediatric OTs! *********This is an exciting chance for us to share OT resources, ideas, techniques, theory, experiences, and support with other OTs around the world. Let's make the most of it! Consider this YOUR list and make it what you, as an OT practitioner, want it to be.)

parenting_autism (Many internet lists can be found talking about autism - causes, cures, treatments, therapies, semantics, and terminologies...parenting_autism is an alternative to those.
On the parenting_autism list, the focus is on just that - the day-to-day experience of being a parent of an autistic child. Here, we take off our advocate faces, and allow ourselves and each other to talk about our own lives and feelings.
We talk about the little ups and downs that make up our lives. The joy of hearing your child say 'mommy' or 'daddy' for the first time; the miracle that is a hug or kiss. The hurt of being continually pushed away; the frustration of trying to toilet-train an autstic child. The joy of sending your child to school; the frustration of *dealing with* the school. We trade ideas on discipline, taming tantrums, and behaviours.
Above all, we are honest about how we feel. If someone is having a horrible, 'I wish this wasn't my life' moment, they can safely post this to the list -- and receive nothing but empathy and understanding.)

sid (A support and information list for parents of children with Sensory Integration Dysfunction and/or related disorders, and for professionals who work with these children. Discussions includes occupational, physical and speech therapy, coping strategies, dealing with school and IEP's and sharing our successes, struggles and joys.   The SID support list is part of the programming provided by KidPower Family Support Resource, a non-profit 501 (c)(3)   tax-exempt organization.   For information on volunteer opportunities please contact us at info@kid-power.com)

timeoutforfamilies (The focus here is on parent to parent support for families with children of all ages who have special mental health needs. The group also offers a professional/family connection through The Time Out for Families Gazette e newsletter, available upon request.)

toolsforlearning ( This e-group is intended primarily for licensed providers of the Fast ForWord family of programs developed by Scientific Learning Corporation. It is for discussion of issues around administration of these programs, both privately and in public schools. This group operates independently of Scientific Learning Corporation, but individuals affiliated with the company may choose to participate. Parents or professionals who are considering Fast ForWord for their children or clients are welcome but are encouraged to first gain information from the Scientific Learning web site, www.scilearn.com. While Fast ForWord is the primary focus of the group, we are open to discussion of other innovative techniques for assessment and remediation of language and learning problems.)

VerbalBehavior (The focus of this list is Applied Verbal Behavior (AVB), a specialty within the field of Applied Behavior Analysis (ABA).   AVB is based upon B.F. Skinner's 1957 analysis of verbal behavior, which looks at the functions of the different verbal operants (units of language). AVB addresses difficulties in the development of communication seen in most individuals with autism and other related disabilities, in part by emphasizing functional language and tying it to motivational variables.   Applied Verbal Behavior has yielded dramatic outcomes for many students and has recently been popularized through the successes of certain professionals, notably Drs. Sundberg, Partington, Carbone, McGreevy, Michael, et al. Members of this list post and answer questions pertaining to teaching with VB.   Responses are checked before approval to ensure a high quality of information.   Welcome! )


ABA-PRO@MAELSTROM.STJOHNS.EDU ABA-Pro (248 subscribers)

APRAXIA-KIDS A resource, discussion list for families of children with developmental apraxia of speech (verbal dyspraxia) and the professionals that care about them. Subscription address:LISTSERV@LISTSERV.SYR.EDU Instructions: In the body of your email, send the message, SUBSCRIBE APRAXIA-KIDS Digest: Send the command, SET APRAXIA-KIDS DIGEST Listowners: Sharon Gretz (1400 members) sharong@nauticom.net Website: http://www.jump.net/~gmikel/apraxia/

CEL-KIDS@MAELSTROM.STJOHNS.EDU Celiac/Coeliac Wheat/Gluten-Free Children List (520 subscribers)

CELIAC@MAELSTROM.STJOHNS.EDU Celiac/Coeliac Wheat/Gluten-Free List (2,986 subscribers)

EPILEPSY-L@HOME.EASE.LSOFT.COM Epilepsy support group (502 subscribers)

ANI-L@LISTSERV.SYR.EDU Autism Network International (310 subscribers)

ANI-L@LISTSERV.UTK.EDU Autism Network International (149 subscribers)

AUT-2B-HOME@MAELSTROM.STJOHNS.EDU AUT-2B-HOME Homeschooling Children with Autism (358 subscribers)

AUTINET@LISTSERV.IOL.IE AUTINET FORUM - Autism & Asperger's Syndrome Discussion List (674 subscribers)

AUTISM@MAELSTROM.STJOHNS.EDU SJU Autism and Developmental Disabilities List (1,759 subscribers)

AUTISM-PHYSIO@MAELSTROM.STJOHNS.EDU Physiological Theories & Interventions Related to Autism (194 subscribers)

CAPD@MAELSTROM.STJOHNS.EDU CAPD A discussion of Central Auditory Processing Disorders. (477 subscribers

CAPD-PRO@MAELSTROM.STJOHNS.EDU CAPD-PRO (180 subscribers)

Fragile X Listserv (This is a virtual support and information exchange group for all interested parties, including parents, other family members, educators, and medical professionals. We are grateful to Emory University for sponsoring this listserv. FRAXA started the listserv in 1995 to serve the entire fragile X community. Send mail to LISTSERV@LISTSERV.CC.EMORY.EDUwith the following command in the body of your e-mail message: SUBSCRIBE FRAGILEX-L)

HYPERLEX A support group for hyperlexic persons, for their families, and for professionals. (A form of autism. According to the American Hyperlexia Association, hyperlexia is a syndrome observed in children who have the following characteristics: A precocious ability to read words, far above what would be expected at their chronological age or an intense fascination with letters or numbers; significant difficulty in understanding verbal language; and abnormal social skills, difficulty in socializing and interacting appropriately with people.) Subscription address: LISTSERV@MAELSTROM.STJOHNS.EDU Instructions: In the body of your email, send the message SUBSCRIBE HYPERLEX Your Full Name Digest: After receiving your confirmation send the command: set hyperlex digest Listowners: Ted Whaley, webmaster@hyperlexia.org ; Donna Randell, ar272@chebucto.ns.ca Websites: http://www.hyperlexia.org/

Latetalkers Latetalkers is a discussion forum for anyone interested in the late development of speech in children, regardless of cause. It is a low volume and friendly list and may be of interest to those who cannot keep up with the volume on the CAPD list. Subscription instructions: Visit http://www.onelist.com and subscribe to LATETALKERS. Listowner: Karen, peck@igs.net

ANGELMAN For caregivers of people with Angelman syndrome.Subscription address: MAJORDOMO@MORNINGSTAR.COM Instructions: In the body of your email, send the message, SUBSCRIBE ANGELMAN For the digest: Send this message to the above address: subscribe angleman-digest Web site: http://asclepius.com/angel Listowner: Ashley Burns ashley@morningstar.com Greg Burns gdburns@morningstar.com

ASPERGER The ASPERGER mailing list exists for discussions of all aspects of Asperger Syndrome (AS) and other forms of high-functioning autism,
including Pervasive Developmental Disorder (PDD). Subscription requires owner approval following your response to a short list of questions. The
list is private and limited to families of, and persons with, AS/PDD/autism. Subscription address: LISTSERV@MAELSTROM.STJOHNS.EDULISTSERV@MAELSTROM.STJOHNS.EDU Instructions: Send the message, SUBSCRIBE ASPERGER To contact the listowners write to ASPERGER-REQUEST@MAELSTROM.STJOHNS.EDU

AutismCommunity Purpose of this list is to exchange ideas exclusively on the topic of housing needs of autistic people & how to plan for & meet those needs.  Some of the topics that would be considered relevant are:  co-housing, intentional communities, group homes, live-in caregivers, guardianship, assisted living, etc. This list is not for the discussion of general autism topics, school problems, parenting issues, and most casual chit chat. Subscription address: AutismCommunity-subscribe@onelist.com Instructions: Send a blank message to the subscription address above. Subscribe Online: Visit http://www.onelist.com and subscribe to AutismCommunity Listowner: Carol Parker, AutismCommunity-owner@onelist.com Web Site: http://www.geocities.com/Heartland/Woods/2869/index.html

C-NET_CHILDNEURO Discussion of neurological disorders of speech, voice, language and swallowing in children. ChildNeuro focuses on professional concerns, cultural and reimbursement issues, as well as assessment and management problems and dilemmas, interesting cases, and research needs. Parents and families are encouraged to bring questions to the list. (Previously called CHILD-NEURO-PARENT). Subscription address: LISTSERV@LISTSERV.ARIZONA.EDU Instructions: In the body of your email, send the message, SUBSCRIBE C-NET_CHILDNEURO

C-NET_CHILDRENS_LANG_DISORDERS A small mailing list with occasional posts of questions or responses related to children's language disorders. Subscription address: LISTSERV@LISTSERV.ARIZONA.EDU Instructions: In the body of your email, send the message SUBSCRIBE C-NET_CHILDRENS_LANG_DISORDERS Listowner: Pedro Carrasquilla carrasqu@U.ARIZONA.EDU

DADVOCAT Dads of children with disabilities or special health needs Subscription address: LISTSERV@LSV.UKY.EDU Instructions: In the body of your email, send the message, SUBSCRIBE DADVOCAT Digest: Send the command, set dadvocat digest

HKWK The Homeschooling Kids With Disabilities list is for discussing all issues related to teaching a child with any special educational need at home. Subscription address: HKWD-SUBSCRIBE@MAKELIST.COM Instructions: Send an empty message to the address above or visit the E website address below. To unsubscribe, send a message to hkwd-unsubscribe@makelist.com Website: http://www.egroups.com/list/hkwd/ Listowner: Maaja, maaja@qi3.com Website: http://www.eGroups.com/list/hkwd

Kids Together Inclusion Listserve (Discussions dedicated to sharing and discovering solutions for educating children with disabilities in general education classes. How to use technology, adaptations and modifications to make general education classrooms accessible to all children.)

LD-LIST This is an open forum for anyone wishing to obtain or share information about the different aspects of learning disabilities. (It may shut down for June-August, but always resumes in September.) Subscription address: MAJORDOMO@CURRY.EDU Instructions: In the body of your email send ONLY the message, SUBSCRIBE LD-LIST Listowner: Curry College in Milton, MA, ld-list-owner@curry.edu Website: http://www.curry.edu:8080

NO-MILK Milk/Casein/Lactose-Free List. Includes families and individuals on these diets. Subscription address: LISTSERV@MAELSTROM.STJOHNS.EDU Instructions: In the body of your email, send the message, SUBSCRIBE NO-MILK Digest: Send the command, set no-milk digest Listowners: Max Desorgher maxdes@xs4all.nl

OCD-L For the discussion of how Obsessive Compulsive Disorder affects life. The membership of OCD-L may include those with OCD, their families and friends and treating professionals but the membership is primarily those with OCD themselves. A special feature of the list is an extensive FAQ and number of doctors who answer questions about OCD. Subscription address: LISTSERV@VM.MARIST.EDU Instructions: In the body of your email, send the message SUBSCRIBE OCD-L Digest: Send the command SET OCD-L DIGEST Listowners: Chris Vertullo chris.vertullo@marist.edu (641 members)

OUR-KIDS A support group for parents, caregivers and others who are working with children with physical and/or mental disabilities and delays. Heavy traffic. Subscription address: LISTSERV@MAELSTROM.STJOHNS.EDU Instructions: In the body of your email, send the message, SUBSCRIBE OUR-KIDS Your Real Name Digest: After receiving your confirmation send the command, set our-kids digest Listowners: Randy Ryan randy@opid.littondsd.com Website: http://www.our-kids.org (821 members)

POV-TWITCH Members include mothers of children with tourette syndrome, or adults who have spent a lifetime facing those issues. Medical doctors in the subject of tourette syndrome and people with advanced degrees in allied fields are also members of pov-twitch. Subscription address: MAJORDOMO@IGC.ORG Instructions: In the body of your email, send the message, SUBSCRIBE POV-TWITCH Digest: Write the address above with the message, subscribe pov-twitch-digest Listowner: Jackie Aron owner-pov-twitch@igc.org

SID : Sensory Integration Disorder SID is an active parental support mailing list for parents and professionals who live and/or work with children who have Sensory Integration Disorder. Subscription instructions: Visit the onelist website at http://www.onelist.com and subscribe to SID. Listowner: Lisa, onemomfor2@aol.com

OT-PEDS List for Pediatric Occupational Therapists to share OT resources, ideas, techniques, theory, experiences, and support with other OTs around the world. An active and informative list. This is not a parent support list, but if you are very interested in these issues you may wish to politely read without posting. Subscription address: Majordomo@Dartmouth. EDUInstructions: In the body of your email, send the message, SUBSCRIBE OT-PEDS Digest: Send the command, set ot-peds digest List Owner:  Kristin Levine, kristin.levine@valley.net

Me-List Home Page (The ME-LIST is an email list centered around discussion of issues related to provision of high-quality, intensive, discrete-trial-based* intervention for children with autism.
[*Discrete-trial-based intervention is also often referred to as ABA (applied behavior analysis), behavioral intervention or "Lovaas" therapy.] )

Autism Channel A real time chat channel for the discussion of autism and related disorders. We also have a message board and full instructions to assist you


NewsGroups

alt.support.autism

bit.listserv.autism

alt.support.epilepsy

uk.people.support.epilepsy

bit.listserv.celiac

alt.support.celiac

alt.support.tourette

alt.support.learning-disab

alt.education.disabled

alt.support.ocd

alt.support.dyspraxia


Back